Service dog changes life for Fairbanks girl with autism

Published Sunday, October 26, 2008

Heidi Haas, background, shows the frustration of parenting a child with autism as Kylie Haas, 4, foreground, who has been diagnosed with autism, runs through the Haas family living room July 14, 2008. Kylie, who has recently been paired with a service dog specializing in children with autism, has exhibited radical positive changes since July.
Kylie Haas, 4, races around the Haas family living room waving an airport baggage tag in July 13, 2008.  Haas, who has been diagnosed with autism, finds stress relief from waving the tag when a behavioral meltdown is approaching. Haas, who has recently been paired with a service dog specializing in children with autism, has exhibited radical positive changes since July.
Occupational therapist K.T. Early, right, and physical therapist Traci Roon, center, apply pressure to Kylie Haas, 4, in a large beanbag at Building Blocks Rehab pediatric therapy clinic August 1, 2008. Kylie, who has recently been paired with a service dog specializing in children with autism, has exhibited radical positive changes since July.  The sensory stimulation of firm pressure on the body of a child with autism has been shown to result in calming effects.
Heidi Haas, center, goes over training commands with service dog Millie as her daughter Kylie, left, and son Brody curl up on the couch in July 14, 2008.  Kylie, 4, diagnosed with autism, has exhibited radical positive changes in behavior in the relatively short time of being paired with Millie.
Kylie Haas, 4, walks on the balls of her feet across the Haas family living room July 13, 2008.  Tip-toe walking is characteristic of many children with autism like Haas. Haas, who has recently been paired with a service dog specializing in children with autism, has exhibited radical positive changes since July.
Kylie Haas, 4, poses with her service dog Millie in Bruce and Heidi Haas's East Fairbanks home October 16, 2008.  Haas, 4, diagnosed with autism, has exhibited radical positive changes in behavior in the relatively short time of being paired with Millie.  “She’s more in tune to this dog than she’s ever been to anything including people,” Heidi remarked.
Kylie Haas, 4, left, poses with her brother Brody, 2, while playing together in the Haas's East Fairbanks home October 16, 2008. Kylie, who has recently been paired with a service dog specializing in children with autism, has exhibited radical positive changes since July.

Support group offers help for parents of children with autism

>FAIRBANKS -- All that kid needs is a good spanking is the unsolicited advice parents of children with autism frequently receive from strangers in public places.

Autism is a word and condition often misunderstood by the general populace, and it is one of the reasons local parents of children with autism created the Autism Society of America Golden Heart Chapter.

The focus of the local chapter is not only to support families and share resources and information, but to educate the public as well.

“I’m tired of people looking at me like I’m a bad parent and telling me what I should do,” said Heidi Haas, mother of a 4-year-old daughter with autism, and president of the newly incorporated chapter.

According to the ASA, “Autism is a complex developmental disability that typically appears during the first three years of life and affects a person’s ability to communicate and interact with others. Autism is defined by a certain set of behaviors and is a ‘spectrum disorder’ that affects individuals differently and to varying degrees.”

But even knowing the basic definition of autism often doesn’t click with people on the outside looking in.

“If you look at a child with autism, you would think they are completely normal,” said Dr. Mishelle Nace, a pediatrician at the Tanana Valley Clinic. “In general, when people see a child ‘misbehaving,’ they think the parents aren’t doing their job, when there is something else going on with the child.”

In years past, children with autism were labeled as quirky or the result of poor parenting, Nace said.

“Now, we’re realizing there is an entity of this that we can diagnose and do something about.”

At the first official Golden Heart Chapter support group meeting in mid-September, about 10 parents, some from as far away as Delta Junction, gathered to talk, vent and share ideas and solutions to specific problems they encounter on a daily basis.

Brainstorming in a positive way is the unspoken rule.

“I don’t want to leave feeling worse than when I walked in,” Haas said.

As parents introduced themselves, the sharing began.

The parents with newly diagnosed children were told they would have to become advocates for their child. They listened closely as the mother of an older child explained how she got her child into speech therapy.

“I called every week,” she said.

Finding respite care for a break is another problem parents face.

Even family members don’t always understand what the primary-care parent goes through each day.

“My husband didn’t believe me, until I left her with him for four hours,” one mother said.

“It feels like it’s me against the world,” said a single father.

Another parent spoke of the realities of her life. “My kid is 6 and is not potty trained,” she said.

An adult member of the group who has been diagnosed on the spectrum shared an early memory of school where he didn’t interact with the other children, but sat in a corner by himself, “memorizing the alphabet backwards.”

Elaine Ponchione, chapter vice president and play therapist, has been involved with the chapter since its beginning.

“I wanted to participate with parents to understand what their needs are,” said the mental health nurse practitioner, who is working on developing and coordinating a program to provide services for children with autism.

According to the ASA, there is no known single cause for autism, but awareness of its prevalence drew national attention in 2007 when the Centers for Disease Control and Prevention issued a report on the developmental disability among 8-year-old children studied in 2000 and 2002.

The report concluded that the prevalence of autism had risen to 1 in every 150 American children, and almost 1 in 94 boys.

Everyday activities like going to the grocery store, the movies, a restaurant or any other public place can become a harrowing experience for a child with autism and his or her parents.

“People say it is a parenting problem, and that is unfortunate,” Nace said.

Social interaction is one of the main problems with which children with autism cope.

“They don’t have the same understanding of personal space and behavior, or good eye contact,” Nace said. “One child may be affected with some behaviors and another not.”

Taking a child out of their routine or comfort zone can quickly escalate into stimulation overload and they feel bombarded with the lights, noise, people, etc., which can produce frustration and set them off, Nace explained.

Before passing judgment on a child experiencing a meltdown in public, Nace recommends giving a supportive gesture to the parent.

“Give them a smile or say, ‘Hey, I’ve been there,’ as opposed to a judgmental look,” she said. “It may make their day.”

The Golden Heart Chapter meets monthly, the third Thursday of the month from 6:30-8 p.m. at the Fairbanks Resource Agency, 805 Airport Way.

The Golden Heart Chapter is the only ASA chapter in Alaska and welcomes members from around the state. To become involved, make a donation or sign up for the monthly newsletter, contact the chapter at goldenheartchapterak@gci.net or 907-374-4421.

FAIRBANKS -- Just three short months ago, 4-year-old Kylie Haas joyfully welcomed Millie, a small, nondescript black dog, into her life.

“My dog, my dog, my dog!” Kylie shouted excitedly as she ran toward Millie, a trained autism service dog, emerging from the arrival gate at the Fairbanks International Airport with her Kentucky-based trainer in tow.

Soon, Millie was snuggled in a beaming Kylie’s arms, her head pressed firmly into her new companion’s shoulder.

A pound puppy of indeterminate parentage, Millie’s muzzle and head are oversized in relationship to her rather small body. She wouldn’t win a second glance from breeders or earn points for form or looks in a dog show. And there are conflicting opinions on her blend of breeds — some say Newfoundland or Aussie mix while others see traces of Shar-pei.

But Millie’s looks don’t matter — the lively, loving, 1-year-old canine, rescued when she was 4 months old, possesses an innate power to change lives.

Since their first embrace, Kylie and Millie’s bonding continues to grow as Kylie, who was diagnosed with autism a year ago, takes on more responsibility with the dog’s care, and Millie continues to enrich Kylie’s life.

Since Millie moved into Bruce and Heidi Haas’ Shannon Park home, the service dog has wrought unexpected changes — not only for Kylie, but everyone in the family.

Within the first week of Millie’s arrival, the changes were startling, Heidi said.

“Kylie had a meltdown that previously might have gone on for one-and-a-half to two hours, but after five minutes of screaming in her room, she came out asking, ‘Where’s Millie? What’s Millie doing?’” Heidi recalled.

Ever since Kylie’s birth, Heidi has spent a great deal of time researching autism and searching for the source of her daughter’s developmental disorders.

“I knew since Kylie was born that something wasn’t right,” she said.

Heidi’s search for answers took time and patience to find out what exactly was wrong and how to cope with it. A year ago, a routine Internet search eventually led her to Millie.

Heidi found Liz Norris, executive director of Pawsibilities Unleashed in Frankfort, Ky. But it took months of telephone interviews, paperwork and fundraising to cover the $3,000 fee before Millie was delivered by Norris on July 10.

Most people think of service dogs as guide dogs for the blind, but Norris, Millie’s handler, has been training autism service dogs for the past 15 years of her 31-year career.

Norris stayed in Fairbanks for a week, training Heidi and the family at home and around town before handing over Millie’s leash.

Procuring a trained service dog has meant a huge commitment for the Haas family, especially Heidi, who is responsible for maintaining Millie’s training.

With Norris’ guidance, Millie successfully worked with the family through a series of exercises and outings, including shopping at Wal-Mart, lunch at Chili’s and the carousel at Pioneer Park.

“I was scared to death at Wal-Mart,” Heidi said, and “I was anxious, anxious, sitting in the middle of Chili’s, but the waitress said, ‘I didn’t even know there was a dog down there.’”

That is the highest compliment for a service dog, Norris said.

Service dogs

The successful placement of a service dog depends on a number of factors, Norris explained.

“The home environment the dog goes into has to be stable, and the family has to be stable in order to keep up the dog’s training and social skills and good manners. You have to take real good care of (service dogs). They’re a tool, just like a wheelchair.”

According to Norris, just the presence of a trained service dog provides a calming effect for a child with autism.

“During a meltdown, the dog will nudge a child, lick the child or put its head in the child’s lap. The dog will try to break the child out of a cycle, redirect and refocus the child on something else.”

Dogs that are selected for autism service training possess an excellent temperment, similar to human caregivers who want to help others, Norris said.

“It’s a dog who truly cares more about the child than the adults in the house and when outdoors more about the child than other adults or dogs.”

In addition to being trained with good obedience skills and public manners, autism service dogs can’t be concerned if a child trips over them or hits them. They are taught to lay across a child to apply deep pressure for a calming effect, help with balance, block a child from running into the street, summon help if needed and accompany a child in a school situation.

Service dogs from Pawsibilities Unleashed typically are trained from three to six months, depending on the dog and the type of assistance training requested.

“Millie’s temperment was tested through two foster homes before she came to me,” Norris said.

Norris said she has been able to find wonderful canine training candidates from animal shelters across Kentucky.

“We have testers at the humane societies who know what we want and call us. We’ve saved a lot of Labs who wanted a job,” she said.

Before acquiring a service dog, Norris said, it is important for parents to not only know what their child’s medical issues and needs are, but to be aware of the long-term commitment and continuing direct involvement with the dog as well.

“I think service dogs can be a great asset,” Norris said. “They can help and enhance a family’s life.”

But the trainer acknowledges that she can’t guarantee a service dog, adding that they can overburden and stress out a family as well.

“You are not going to get a remote control dog like a vacuum you can turn on and off,” Norris cautioned. “They are a living, breathing entity, just like humans.

“It’s not a program for everyone, but for people who want to do it this way it is really successful,” Norris said.

Learning methods

Tracey Hagan, an autism consultant in Kentucky, first learned about autism service dogs about four years ago, but it wasn’t until last May that her 12-year-old son, Tyler, was paired with Carmela, a mixed-breed terrier.

“I was shocked myself at the changes the dog made, even after all the research I have done,” said Hagan, who serves as a consultant for parents, teachers and businesses, and volunteers as an education advocate for parents of children with autism.

“I have seen an amazing difference in my child and some other kids interacting with the dogs,” Hagan added.

Hagan said, that in some sense, dogs have a kind of autism.

“They learn by repetition, they learn visually, and you have to continue to teach them skills or they regress like kids with autism do,” she explained.

According to Hagan, the interest in service dogs for the disabled is increasing as more and more people learn about them and start to use them, not only for autism but for people living with diabetes or seizures.

Twizzler days

Before Millie joined the household, Kylie would dance around the house frequently throughout the day, whirling what the family calls a “twizzle” or “twizzler” — a narrow length of heavy paper like an airplane baggage tag.

Constant motion, called stemming, is a common trait of children with autism, Heidi said. It’s done to relieve stress, in the form of behavior such as flapping hands or spinning.

“By the third night Millie was here, Kylie went to bed without her twizzler,” Heidi said.

Since then, Kylie’s stemming, which used to be a constant, has tapered off significantly. She no longer twizzles in her special-ed classes and usually only picks it up again near the end of the day as she winds down before bedtime.

Autism is a developmental disability that covers a wide spectrum of behaviors. The symptoms are unique to each individual as are the ways sufferers interact and experience the world.

Common characteristics may include lack of eye contact; speech or language delays; sensitivity to sounds, smells, sights, tastes, touch or textures; poor social skills; tantrums, spinning and repetitive behaviors; and a strong reaction to transitions, changes in routines and people.

“They perceive and understand the environment in such a different way than we do; they don’t know how to handle it. They don’t know to accept and work through it,” Heidi said.

As each day went by that first week after Millie’s arrival, the Haases were continually amazed at the behavioral changes they were seeing in their daughter — changes they hadn’t anticipated.

“For the very first time, she went and crawled into her bed for a nap,” Heidi said.

The nightly bedtime routine for Kylie and her 2-year-old brother, Brody, also shortened considerably.

“She began falling asleep quicker — in 20 to 30 minutes versus 60 to 90 minutes — and sleeping through the night for the first time in her life,” Heidi said.

Before Millie joined the family, redirecting Kylie was never possible, Heidi said.

Millie’s presence and involvement with Kylie during the past three months has changed that and many other behaviors. Taking Kylie to public places is no longer as overwhelming and dangerous as it once was.

“She is so much calmer. She not darting away anymore,” Heidi said.

One big test early in Millie’s residency came when she accompanied the family to a live Sesame Street show at the Carlson Center. A similar outing, before Millie, resulted in Kylie walking the halls twizzling the entire time, Heidi related.

With Millie on hand, it was different.

“At the beginning (of the show) whenever she became agitated, she bent down to hug Millie at my suggestion. Then she just started doing it,” Heidi said.

Kylie’s eating habits also have improved significantly. She is now eating an average of three meals a day, up from her previous one, and is trying more nutritious foods and foods with different textures, which she previously shunned.

And Kylie’s tantrums have diminished from at least three per day to maybe one.

Bruce Haas admits he was somewhat skeptical of how a trained dog would be helpful to his daughter and initially viewed Millie’s acquisition as one more thing to take care of.

“Kylie’s pretty high functioning on the (autism) spectrum, and I didn’t think she needed it,” he said.

He quickly altered his attitude.

“The things we are seeing aren’t what I expected. I didn’t think having a dog would change things like Kylie eating breakfast and being more tolerant of people,” Bruce said.

“I’ve seen a change in her openness to new people. Before, there would be dead screaming. Now at Sam’s (Club) waiting in line, she’s open and talking about the dog.”

Therapy continues

Since Kylie was diagnosed with autism, she has been involved in speech, occupational, physical, nutritional and behavioral therapy sessions.

“Early intervention is the key to unlocking these children,” Heidi said.

“Ages zero to 7 are the most critical time for development of the human brain. Engaging the brain is the key to reaching kids and the earlier it is done the better.”

Forty hours a week of intense therapy is recommended for the average child on the autism spectrum.

Heidi’s research and interest in helping her daughter and other parents of children with autism in the community sparked her involvement in organizing the newly formed Autism Society of America Golden Heart Chapter, a nonprofit family support group.

During the summer months, Millie accompanied Kylie to her therapy sessions, lying quietly nearby. No matter what Kylie was involved in, she was certain to check on Millie’s whereabouts, asking, “Is Millie watching me?”

Sometime in the future, once Mom, Kylie and Millie get it worked out, Millie may be joining Kylie in her daily special-education pre-kindergarten class.

The Haas’ No. 1 goal for their daughter is for Kylie to be a happy, productive member of society.

“We don’t want her to depend on us all her life or be in a group home. We want her to be independent, to be respected in society and be productive in her life,” Heidi said.

“My husband and I both truly believe she will be fine. She will learn coping mechanisms and skills. It just isn’t going to come as soon as other children.”

Homelife adjustments

Millie’s adoption hasn’t been without challenges.

Kozmo, the family’s 5-year-old pet pug, has gotten a whole new education since Millie joined the household.

Everything went smoothly between the two canines the first couple of months, until there was a squabble over a doggie bone. Millie was the aggressor in that incident and also has displayed some aggression toward dogs passing by when she is outdoors in the fenced yard.

The new behavior alarmed the Haases, especially since Heidi was near term with their third child. They quickly called Norris for advice.

“Basically, we started back at the beginning, reminding Millie she is a service dog and not the alpha dog,” Heidi said.

Vinegar spray to the mouth, which is harmless but tastes bad, was used to address Millie’s unacceptable behaviors.

“We also have learned that typical pet behavior can quickly rub off on a new dog — trained or untrained — which requires constant training with both dogs,” Heidi said.

The dogs no longer get extra treats in the same area, and Kozmo always gets to eat first and go outside first to refocus Millie as to her place in the household power chain — first people, then family pet, then service dog, Heidi said.

But for Kylie’s parents, adopting Millie has been worth all the time and effort involved. The dog’s positive influence on their daughter has gone way beyond their expectations, they say. Kylie is more affectionate, more talkative and more engaged with others these days.

Kylie’s affection for family members and disposition began picking up steam shortly after Millie moved in.

“Kylie seems happier and is getting more affectionate with the hugs and ‘I love yous,’” Heidi said.

“I couldn’t see us going back to what life was like three months ago. I look at Millie as kind of another child in our house, right now,” Heidi said.

“Kylie hugs Millie. She talks to her and asks me, ‘What does Millie say?’ If Kylie is eating, she wants Millie to eat. She wants to know if Millie loves her. Everyday she has to confirm that,” Heidi said. “She says ‘Millie is my best girl.’”

Each day brings more positive behavioral changes, proving to Kylie’s parents Millie’s value in their daughter’s life.

For the first time ever, Kylie is doing pretend and dress-up play and starting to come out of her shell and interact with other kids.

“Kylie never cared about what anybody wanted to do. It was always what she wanted to do,” Heidi said.

Recently, Kylie asked Heidi for a Barbie doll to take with her to play at a friend’s house.

“I was thrilled,” Heidi said. “It was the first time she cared about what she needed to participate in an activity.”

Kylie’s brother, Brody, a year and a half younger, was first to notice Heidi’s pregnancy. When it was brought to Kylie’s attention, she became curious and surprised her parents recently with the request to kiss the baby (She wanted to kiss Heidi’s belly).

Better yet, following Ella Katharine’s birth last Monday, Kylie has been thrilled to hold and hug her baby sister.

“It’s a whole new world,” Heidi said.

Community Discussion

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  1. Preston_Lancashire
    10/26/2008, 3:15 a.m.
    Suggest removal

    Excellent story.

  2. FrodoBaggins
    10/26/2008, 7:57 a.m.
    Suggest removal

    I agree.
    I learned alot from this story.

  3. bourque77fan
    10/26/2008, 8:42 a.m.
    Suggest removal

    What an AMAZING story! The continuing transformation of this family is incredible. Blessings to the Haas family.

  4. MrsSaenz
    10/26/2008, 9:23 a.m.
    Suggest removal

    Never underestimate the power of love.

  5. glow
    10/26/2008, 9:51 a.m.
    Suggest removal

    Good dog!

  6. crosswind
    10/26/2008, 10:07 a.m.
    Suggest removal

    ECHO : EXCELLENT STORY and sidebar about Golden Heart AK chapter

  7. aurora
    10/26/2008, 2:46 p.m.
    Suggest removal

    I tell you, i think we have yet to even begin to tap into the healing that dogs can accomplish. I have always wanted to try them with prison inmates. They have worked so well in juvenile settings.

  8. OldSkoolNook42
    10/26/2008, 3:19 p.m.
    Suggest removal

    Very touching story.
    Took up a great deal of the "A" section.
    A welcome relief from the usual Election stuff, crime and punishment that dominates these pages!
    Bravo DNM!!!!!

  9. Andrew Briseno
    10/26/2008, 3:26 p.m.
    Suggest removal

    Thank you for sharing. Very good story.

  10. RandomAlaskan
    10/26/2008, 4:21 p.m.
    Suggest removal

    What a wonderful story! I had goose bumps and misty eyes through the whole thing. Service dogs can be such an incredible blessing. I wish all the best to Kylie, Millie and the entire family. Thanks for being willing to share your private life with the rest of us!

  11. pixyfae
    10/26/2008, 4:51 p.m.
    Suggest removal

    BEAUTIFUL STORY! As an Auntie of an Autie and a dog lover this story was right on. I have read articles on the Autism service dogs and this one was by far the best! I hope we can get the word out. My Nephew loves animals and this could possibly be an astonishing breakthrough in the world of Autism.

  12. dilbert
    10/26/2008, 5:42 p.m.
    Suggest removal

    At the risk of sounding like a broken record; this was a great story. It is nice to read about positive things happening in our community.

  13. hambone
    10/26/2008, 8:49 p.m.
    Suggest removal

    great piece. the Haas are a true wonderful Fairbanks family. Dad Haas coaches football and basketball for Lathrop helping Fairbanks by developing better young men and women. Working two jobs to allow Heidi to stay home and be the best mom by being around her children as much as possible.

    FDM should do a story a month on Sundays about a family in our area. The next one could be about how the Rogers family is doing with the house they got built.

    peace

  14. Sweet71
    10/26/2008, 11:15 p.m.
    Suggest removal

    Glad to see the Newsminer FINALLY doing a story about Autism. We've only been bugging them for years to give some press to let parents know that there are other people out there with the problem.

    For anyone looking for more information on Autism in Fairbanks, there is a group on Yahoo.
    http://health.groups.yahoo.com/group/Aut...

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